{"id":34507,"date":"2025-08-06T12:37:48","date_gmt":"2025-08-06T10:37:48","guid":{"rendered":"https:\/\/confederaciopenyes.cat\/the-confederacio-mundial-de-penyes-joins-the-fight-against-rare-diseases-in-children\/"},"modified":"2025-08-06T13:04:20","modified_gmt":"2025-08-06T11:04:20","slug":"the-confederacio-mundial-de-penyes-joins-the-fight-against-rare-diseases-in-children","status":"publish","type":"post","link":"https:\/\/confederaciopenyes.cat\/en\/the-confederacio-mundial-de-penyes-joins-the-fight-against-rare-diseases-in-children\/","title":{"rendered":"The Confederaci\u00f3 Mundial de Penyes joins the fight against rare diseases in children"},"content":{"rendered":"\n<p>The Confederaci\u00f3, through its supporters&#8217; clubs and territorial federations, joins this cause to expand its reach and help improve the lives of those affected. The Nica doll, a symbol of hope for thousands of families, begins its solidarity journey across Spain with the aim of raising awareness and supporting the fight against rare diseases.  <a href=\"https:\/\/www.elviajedenica.org\/es\/\"> <strong>This initiative, led by Hospital Sant Joan de D\u00e9u and the Spanish Federation for Rare Diseases (FEDER),<\/strong><\/a><strong> <\/strong><strong>seeks to raise funds to expand access to advanced genetic studies <\/strong>through the \u00danicas network, which already serves <strong>more than 30,000 children across the country<\/strong>.<\/p>\n\n<p><strong>Each Nica doll carries a QR code that allows people to learn the story of the family circulating it and make donations<\/strong>. The project is backed by organizations committed to social impact and supported by groups actively involved in solidarity causes.  <\/p>\n\n<p>Among them is the Confederaci\u00f3 Mundial de Penyes, which joined FED<strong>ER thanks to the ongoing work of its CSR commission<\/strong>. FEDER is chaired by <strong>Juan Carri\u00f3n<\/strong>, who is also president of the Federaci\u00f3n de Pe\u00f1as de M\u00farcia and the PB Totana. This connection fosters regular <strong>collaboration between the supporters&#8217; clubs <\/strong>and awareness-raising actions about these diseases, highlighting the solidarity values that define Bar\u00e7a fandom. <a href=\"https:\/\/confederaciopenyes.cat\/en\/the-confederacio-mundial-de-penyes-joins-in-the-institutional-declaration-of-the-world-day-for-rare-diseases\/\">The Confederaci\u00f3 already supported FEDER on Rare Disease Day, last February 29<\/a>.   <\/p>\n\n<div class=\"wp-block-buttons is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-16018d1d wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button is-style-fill\"><a class=\"wp-block-button__link has-accent-background-color has-background wp-element-button\" href=\"https:\/\/www.elviajedenica.org\/es\/\">Support the cause!<\/a><\/div>\n<\/div>\n\n<p><\/p>\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-full\"><a href=\"https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-12.25.26-1.jpeg\"><img decoding=\"async\" width=\"934\" height=\"1010\" data-id=\"34498\" data-src=\"https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-12.25.26-1.jpeg\" alt=\"\" class=\"wp-image-34498 lazyload\" data-srcset=\"https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-12.25.26-1.jpeg 934w, https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-12.25.26-1-277x300.jpeg 277w, https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-12.25.26-1-768x830.jpeg 768w\" data-sizes=\"(max-width: 934px) 100vw, 934px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 934px; --smush-placeholder-aspect-ratio: 934\/1010;\" \/><\/a><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-11.17.25.jpeg\"><img decoding=\"async\" width=\"1024\" height=\"576\" data-id=\"34489\" data-src=\"https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-11.17.25-1024x576.jpeg\" alt=\"\" class=\"wp-image-34489 lazyload\" data-srcset=\"https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-11.17.25-1024x576.jpeg 1024w, https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-11.17.25-300x169.jpeg 300w, https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-11.17.25-768x432.jpeg 768w, https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-11.17.25-1536x864.jpeg 1536w, https:\/\/confederaciopenyes.cat\/wp-content\/uploads\/2025\/08\/WhatsApp-Image-2025-08-06-at-11.17.25.jpeg 1640w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/576;\" \/><\/a><\/figure>\n<\/figure>\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Confederaci\u00f3, through its supporters&#8217; clubs and territorial federations, joins this cause to expand its reach and help improve the lives of those affected. The Nica doll, a symbol of hope for thousands of families, begins its solidarity journey across Spain with the aim of raising awareness and supporting the fight against rare diseases. This &#8230; <a title=\"The Confederaci\u00f3 Mundial de Penyes joins the fight against rare diseases in children\" class=\"read-more\" href=\"https:\/\/confederaciopenyes.cat\/en\/the-confederacio-mundial-de-penyes-joins-the-fight-against-rare-diseases-in-children\/\" aria-label=\"Read more about The Confederaci\u00f3 Mundial de Penyes joins the fight against rare diseases in children\">Read more<\/a><\/p>\n","protected":false},"author":4,"featured_media":34487,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[78],"tags":[2599,2614,2600,2561],"class_list":["post-34507","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news-en","tag-confederacio-mundial-de-penyes-en-3","tag-feder-en","tag-news-en-2","tag-penyes-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.5 (Yoast SEO v27.6) - 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